Just to clear up any misconceptions, if there are any, Aiden has never had to be resuscitated nor has any part of his body “stop” functioning nor does he have any chromosomal or neurological abnormalities, a “switch” was supposed to happen around 6wks prenatally where all the bodies organs flip, Aiden’s started to, but didn’t quite do it. There was, and probably still is, some major concern about what will naturally happen inside of him, because to put it simply, he’s the only one in the world with his anatomy structure. They didn’t know if any of his organs would function, yet by a miracle of God, they work in perfect harmony. His heart however is the complication, without having structural and operational repair Aiden would not survive for long off of medicine that keeps blood flowing through his body, the operation on Friday of this week will attempt to repair the major issues with Aiden’s heart. Alot has to happen surgically and miraculously (again, Aiden’s anatomy) for him to pull through. At no time would we put Aiden through something that is medically unethical nor put him through un-necessary pain. The results of this first surgery will tell of Aiden’s future. God didn’t make a mistake creating Aiden, he sent us a miracle. If you step back to look at how many people have taken an interest to Aiden and his life, it brought people closer, it brough faith to the faithless, it created a passion in some and awareness to a cause that not only directly results in the death of 1 million babies year after year, but governments around the world completely ignore. If not for the compassion of those affected somehow by Congenital Heart Defects there would be alot more deaths. Many more lives can be saved, but it will take a fiery passion, are you in?
As long as things remain calm and Aiden remains strong (btw his body’s natural repair mechanisms functioned so well that the doctors were shocked at how fast Aiden recovered from being as they said “very sick” — babies have died at 18 lactaid levels, Aiden had a 21 — holding a 1.5 right now, tightly. How’s that for God’s miracle in Aiden’s anatomy, I was told it would take 48 hours if at all, took less than 1/2 a day.) this will be my last post until the night before Aiden’s surgery (which is sometime on Friday). Thank you all for your continued prayers and reading and I hope Aiden continues to mean something to each and every one who read this, for whatever they take from it.
Matthew 17:19-20 "For truly I tell you, if you have faith the size of a mustard seed, you will say to this mountain, 'Move from here to there,' and it will move; and nothing will be impossible for you."We founded a Facebook group called "Praying for Children with Health Problems" - if you have a Facebook account and would like to receive notifications and praise reports on children with heath problems in need of prayer please visit us below:
I’ll be there Friday and praying in the meantime.
Holding strong in our prayers! Will think of y’all and pray all day long on Friday!
We got good news/bad news (though the bad is actually good as well) at Tristyn’s cardio appt today! Miracles happen! He is growing and thriving. So well in fact that the pulminary band that was placed in the 1st surgery (supposed to last about 6 months), well he’s grown so well (in 9 weeks), he’s almost outgrown it. So, his 2nd surgery will more than likely happen within the next 2 months! Before the new year. Not trying to take over your page, just showing that these babies are STRONG! The have the will to LIVE, and with faith and God guiding the Dr’s and Surgeons, our miracle babies have the CHANCE to live! It’s remarkable!
We will keep praying and we feel in OUR hearts that your miracle will come through this flying! And you are correct… your son, your miracle has brought so many together! It’s a wonderous thing!
God Bless you all!
Praying for Aiden, forwarding to all prayer warriors. Praise be to Jesus. Also praying for family and doctors. God Bless.
Still keep praying for Aiden:)
I am and have been praying for Aiden and you , his parents and fam . , frends and docs. I know what you are going through ! Our daughter Eliana ( Eli =My God and Ana = has answered me ) has also a very severe heartdefect.
At 8 weeks old she had a “cathastrophic”stroke and the doc thought she would be brain dead……We and many people prayed and prayed and SHE WAS ABSOLUTELY 100% OK !! She almost died a second time during a surgery and pulled through again . She will have her hopefully total repair Jan 27. As Aiden she has brought such a gift to the whole world , so many people were and still are touched . She keeps on smiling. However long we have with her we are thankful . As I read your letter to the Boston surgeon I cried. I recognize what you are going through so much ! All our love,
Astrid , Will and Eliana
I know Aiden is being prayed for from one side of the globe to the other! I sent your link to my entire e-mail list! You all have brought a new awareness to me on CHD. We all take for granted our health and our childrens. Even after having 2 babies in the NICU it is easy to forget their fragility now that they are thriving. Aiden’s journey has renewed my thankfullness(is that a word?)! He has touched my life, and Levi you are right, God doesn’t make mistakes in creating any human life!
I came across this site and have been so touched and moved by your story. Our son Joel also has CHD and spent his first 3 mos in CICU (9 weeks intubated). He had many miracles along the way, things that perplexed and amazed the doctors. He was not given a great chance and is now 9 mos old. He has more surgeries to go and still has a feeding tube, but he is thriving! God is faithful! We will be praying for your little miracle and know he is in God’s hands!
I just have to tell you that I check your blog daily and think about your son every day! He truely has been a blessing on earth and one that has touched more lives than some do in a lifetime. I am touched that you have shared your private moments with so many strangers. I hold my babies closer every day and pray for your miracle every night.
He is BEAUTIFUL!!! Keep the faith as you have through it all because that is the only thing to keep you moving forward.
God bless you and your entire family! I will always keep aiden in my heart and his story will remain with me forever. HE is the reason to never lose faith!
God bless you all:)
We are still praying for your family every single day. I know tomorrow will be one of the hardest days of your life, but know that God is watching over Aiden.
Just got back from Washington DC – meeting with congressional leaders on the Hill. It’s time. Together we are all making a difference in this fight. Aiden has alot of strong warriors by his side. Here and above. Praying for a peaceful day today. And a powerful day tomorrow.
Annamarie – Mom to Jack, Elle and Eve – born 12/12/08 with CHD/Severe mitral valve regurg, WPW, SVT
HI, My name is Hilary I have a son that was born with HLHS (CHD). so I know what your going thought. an I just wanted t say I am praying for Aiden and your family.
http://www.carepages.com/kipmichael
http://www.myspace.com/kipmichael07
http://www.facebook.com Hilary Dupree Theriot
It was nothing as serious as Aiden, but I have have 3 children who had congenital heart defects. I kept my faith in God and realized the resilience children had to heal and bring that faith about. I will keep you in my prayers.
PRAYING FOR BABY AIDEN TODAY AND ESPECIALLY ON FRIDAY!
HE IS IN GOD’S LOVING HANDS ALWAYS
We are praying for Aiden’s health and for a good surgery.