On May 27th 2009, my wife Tracy and I were told that the UltraSound (U/S) tech “something is wrong” — 5 gruesome days later we found out there was a complex heart defect some Dr’s consider “incompatible with life”. Thankfully those Dr’s dont work at Children’s Hospital of Denver.
Unbalanced AVSD w/ Pulmonary Atresia and Heterotaxy Syndrome. Unbalanced AVSD means there is a hole between the right atrium and his only ventricle (people have 2), he also has no Pulmonary Valve (that is the pulmonary atresia)… He does have a few organs including his stomach on the ‘wrong’ side of his body making the possibility that his intestines may be twisted all up incorrectly (malrotation) which requires surgical intervention itself to “untwist” them. We also are running the possibility of him having asplenia (no sleep) or polysplenia (more than one spleen) — either one of those, especially asplenia is very bad. His infection fighting ability won’t exist. It’s very common in Unbalanved AVSD patients. We also, having AVSD, have a 75% change he’ll have down syndrome. We declined amniocentesis testing for an answer. With the Atresia he’s most likey going to have heart block they say and require a pacemaker. Our surgeon also told us the chance of Aiden needing a heart transplant is very real. And depending on their findings of his own fetal scan / cathederization, could be very likely.
Matthew 17:19-20 "For truly I tell you, if you have faith the size of a mustard seed, you will say to this mountain, 'Move from here to there,' and it will move; and nothing will be impossible for you."We founded a Facebook group called "Praying for Children with Health Problems" - if you have a Facebook account and would like to receive notifications and praise reports on children with heath problems in need of prayer please visit us below:
Aiden Matthew Beers….. you are in the palm of your Heavenly Fathers hand! We all love you so very much Aiden! You will have an AMAZING story to tell MANY of how Jesus healed your precious little body! I can not wait to give you lots of kisses and snuggles!!! xoxoxoxo G-Ma Neenie
HI Levi and Tracy
I just wanted to let you know that you are in our prayers. I also have a child with CHD and we are treated at the Herma Heart Center at CHW. The physcians, nurses, staff are unbelievably wonderful people. The center has a fantastic success rate. If you have any questions about Herma , I will do my best to help you find anwsers. Praying for baby Aiden.
Melissa
Hi Tracy and Levi
I am a very special friend of Winnies,we have been there for each other in hard and good times,i want you to know that my prayers are with you and aiden ,i know that God is with you and aiden and he is watching over you,Keep counting all your blessing that God gives us and helps us everyday.I Love you and will be praying for you and aiden.
followed your story from babycenter..My LO is 1 and has the same exact dianoses..he will be fine..i will post more on babycenter
To my son Levi and my baby girl Tracy, you know me and I don’t understand all of this. You know I believe in The Lord. Baby Aiden Matthew, you will soon meet your Grammie Winnie. One day I am going to tell you how I didn’t understand, but I prayed for you every waking moment. I prayed that The Lord Blesses you and is always with you and your daddy and mommy. You are so very close to my heart. You will know I talked to your daddy and mommy every day. You will get the love I have for your daddy and mommy each and every day. My world will be blessed and happier with you added. To my son, I love you Levi and Thank You for being the best son ever. Tracy, I love you and Thank You for being my grand baby Aiden’s mommy. Baby Aiden Matthew, I love you and I am praising The Lord because I can’t wait to have you in my life! XOOXOO always and forever.
Dear Levi and Tracy, I am a friend of Winnie and have just recently learned of your situation. I belong to the church across the street from your mom and we went together to Sat. eve.service so that we could pray for the continuing improvement in baby Aiden’s health. The Lord has already answered many of your prayers and that is wonderful news. I know that you still have a long way to go but I want you folks to know that the congregation at West Side Methodist will keep baby Aiden on our prayer chain and pray for both of you and him faithfully. God bless you and the medical team caring for baby Aiden. Take care .