The emotions you have given me have been the most amazing feelings in my life, touching your skin, smelling your hair, kissing your feet, feeling your little hear beat. I was compelled from the moment your mommy and I knew we were pregnant that I would do everything for you, that I’m afraid I failed at. As my father failed me time after time I made a promise to God if he ever gave me a child I would do everything for that child. Your mother and I tried for quite a long time, without success. After 8 years you sweet Aiden were conceived. We knew you were a gift from God so we gave you the middle name Matthew. At your 20 week ultrasound we were told of a problem, you had a congenital heart defect. Your mother and I were devastated, not for ourselves but for you. What would it mean for you, would your life be inhibited? With the best medical science our country offered we were told “we can fix it”. There was a time they wanted us to “terminate” you, what an awful thing huh little buddy? Your mommy and I were having no part in that whatsoever, not even on a religious level, just on a personal one. You were OUR child, YOU were worth saving no matter what the cost. Your mommy had done an amazing job keeping you healthy, watching what she ate when she had that “tummy” diabetes. She went through one of the most painful births lasting 52 hours, but you know what? None of that matters, because we would have done anything for you. We searched the top hospitals and surgeons in the country to fix your heart, and they did, but for whatever the Lord’s reason, he wanted you there.

I want to tell you buddy, that you made me feel the best feelings in my life, and I will cherish the time me and you spent together, and although you never got to leave that hospital, I will take your spirit everywhere I go. I am so sorry that I could not do more, that I couldn’t save you. I would have much rather traded my life for yours.

Even though I question the Lord, I question his reasons, why he would give children to parents whom disown them, who beat them, who curse at them, who smoke drugs during their pregnancy and we, whom give generously on all levels to all in need are the ones in this situation, makes no sense to daddy. Yet you touched more lives in the 15 days of your short life than most people do in a lifetime and you brought awareness to something that desperately needs attention.

I will forever miss you my little buddy, I will always think and dream of the times I wanted to spend with you, and share things with you. It would have been magical. You have no idea how numb I feel and how sorry I am and how my heart just aches this horrible horrible feeling. I miss you so much already. Please forgive me that I couldn’t do more, I will forever forever forever love you with what’s left of my heart.

Goodbye Aiden, I Love You……..

9:30AM MST – Aiden successfully made it onto the Heart & Lung machine with no complications. Repair will begin (currently about 30 minutes underway). We were told would last 3-4 hours. So far a miraculous beginning. God is great and we have faith in this day, this is the Lords miracle.

10:40AM MST – Aiden’s Pulmonary Arteries were successfully repaired from being very far apart. They used a biomesh as the heart tissue they used was a little stretchy, but he handled everything PERFECTLY. 5 miracles and counting just today! Now they are going into the heart for further repair.

12:30PM MST – Aiden’s leaky Mitral Valve has been repaired, poor man’s (visual) test indicate success.

2:00PM MST – The COLD machine will be used to cool Aiden down, to then install the BT Shunt. After he will be warmed and attempted to be taken off the heart & lung machine.

3:32PM MST – Aiden’s BT Shunt was installed and Aiden successfully came off of the Heart & Lung machine, an ECHO was performed to check the valve, it is still leaking however it is much better than it was. Our OR Coordinator has said that no one was sure if he would come off the Heart & Lung, however he did and his stats stabalized perfectly. They said about another hour until he’s out of the OR. I expect we’ll speak with Dr. Campbell after the surgery to see what we can expect with the valve. It was a severe+ leak so you can imagine that the level of progress they have made is ASTOUNDING.

4:00PM – Bleeding has subsided from Aiden’s BT Shunt. They are monitoring and once entirely stopped he will be closed up, sternum left open for any kind of issues that arise. We will be notified once the surgery is complete and Aiden is out of the OR. God has shown us SO MANY miracles today, where many said Aiden would need a miracle from God. Here’s your proof Thanks Lord. We are basking in your miraculous day!!!!!!!!!!!!!!!!!

5:25PM – Bleeding has quit from Aiden’s OP. He’s “closed up” with a sternum patch and will be transferred to the CICU. From what happened in the OR they are pretty happy with how things went. All of the repairs have been completed and now it’s all up to little Aiden’s little body to recuperate. Dr. Campbell has said the surgery went very well and his valve so far is working fine, the next 48 hours will tell how things will go. If Aiden takes a serious dive, they told us there isn’t much they can do. However, if the repairs work, we’re in a whole new GOOD ballgame. The Lord has been great, but don’t keep praying. We need all the prayers we can get so he makes it through this critical phase.

As long as things remain calm and Aiden remains strong (btw his body’s natural repair mechanisms functioned so well that the doctors were shocked at how fast Aiden recovered from being as they said “very sick” — babies have died at 18 lactaid levels, Aiden had a 21 — holding a 1.5 right now, tightly. How’s that for God’s miracle in Aiden’s anatomy, I was told it would take 48 hours if at all, took less than 1/2 a day.) this will be my last post until the night before Aiden’s surgery (which is sometime on Friday). Thank you all for your continued prayers and reading and I hope Aiden continues to mean something to each and every one who read this, for whatever they take from it.

I can’t tell you the level of praying while being absolutely gut-wrenching sick. Aiden was most definitely in God’s hands. Almost 4 hours later, to our and everyone at that hospitals suprise Aiden’s lactaid levels continuously dropped to a 1 (where it should be) along with all of his other stats remaining stable throughout the rest of the day. We were told it was nothing short of a miracle, but we already knew that.

If you don’t have faith in God, something so obvious cannot be ignored. Yes, Aiden is quite the fighter, but you don’t remove acid levels that fast in your body naturally, it just doesn’t happen. The word phenomenon was mentioned, it should have been divine intervention.

I’m positive the road ahead will be filled with many tests of faith, but I’m very much at peace with Aiden in the Lords hand. And as long as he continues to do well and the cultures come back negative (we already know they will), Aiden will most likely have his surgery this week.

On a lighter note, after seeing how many people joined the “Saving Aiden Matthew Beers” cause, over 1,000 in 4 days, I have created a “Prayer & Support Group for Parents with Babies/Children with Congenital Heart Defects (CHDs)” which can be accessed via facebook @ http://causes.com/chdsupport — We are already climbing to 150 members in less than a few hours. Push that link and our purpose out to all of your outlets, BabyCenter, other places and anywhere you can. This way when someone is in a crisis situation we can get the word of prayer out instantly to thousands. Nothing is more comforting than knowing the Lord stands beside you in your journey. I always hope and pray for the best with all of our children. I cannot do much right now while being in the middle of my own journey, but I want to give everyone the kind of support that I’ve had in recent days, which has pulled me through alot of situations I thought I wouldn’t make it through. So make sure you push that to EVERYONE you can. Prayer is so powerful in the times that we face.

God Bless and THANK YOU for your prayers and thoughts for Aiden. Before I end this I’d like everyone that reads my blogs to pray for a woman named Carol and her son Riley. Riley is in need of a heart and lung transplant, he has some vein problems, heterotaxy, asplenic and has malrotation. Please keep them in your prayers that little Riley get’s the operation he needs to live a long and happy life full of God’s love. You can follow their journey on their blog at http://www.smile4riley.com

“This is Dr. del Nido’s office, he’s out of the country but is on the line and would like to speak with you, do you have a moment?” — I about hit the floor because I honestly had no idea what to think. Was this an, “I’m sorry, we did everything we could too.” type conversation? We got into speaking about Aiden’s condition, see all of us have 4 chambers in our heart, Aiden has only 1 chamber. Aiden also has his pulmonary arteries far apart, where we have ours very close together. Then there is the real issue, his leaky valve. I swear, along with Tracy and the third party I had with me for reference had said Denver had told me they would have to “ignore” his leaky valve, Dr. del Nido said that wasn’t an option if we wanted to give Aiden a good quality life. Then we were told by Dr. Cambell that he would attempt to repair Aiden’s valve. I wanted to know the agressiveness that Denver would take as opposed to Boston in repairing his leaky valve but I know Dr. del Nido was out of the country. Dr. del Nido said Dr. Emani that works with him, they have dealt with 2 cases very similar to Aiden’s leaky valve + partial heterotaxy (his heart is in the correct location), in both cases they went in to remove leakage and repair the valve, leaving the sternum open, in both cases they were able to go back inside in a week and re-remove any extra leakage and re-repair the valve so the valve wasn’t leaking (or very very tiny), this lead to a good quality of life. The question is, how many has Denver seen very similar to Aiden’s, would be continue until it was repaired and how many of those were successful. Along with a slew of other questions I have with recovery time in Boston, how we’d get him home, follow up care in Denver, etc.

Let me make one thing very clear. Children’s Hospital of Denver is an AMAZING place. From the time we were referred we were treated with respect, compassion and honesty. We were given the greatest of coordinators, Shanna. This woman’s heart speaks volumes of her character. She has helped me orchestrate saving Aiden no matter what we have to do. Dr. Kaufman who is a cardiologist in the CICU is nothing short of a GENIUS (and has a very good sense of humor, a pleasure to be around) along with Dr. Adell who has to be one of the most compassionate cardiologists I have ever met. Every one of Aiden’s nurses are so sweet and caring and watchful over him, the entire CICU staff is so pleasant and helpful, even if your having a bad day, they lift your spirits. This place and the people that work there deserve medals. They also have one of the most amazing heart surgeons in the world, Dr. Cambell has saved thousands of lives and even though is a man of few words, has a great character.

I am however moved that a top world cardiologist took the time to personally call while out of the country to discuss for 25 minutes what routes he would take to repair my son, a personal interest, and we’re not even one of their patients. I can only hope that Boston has as caring of people as Children’s has in Denver. I would recommend CHoD to ANYONE… If your in for a CHD you’ve got a blessing in Shanna being your coordinator. I am thrilled to have been at Children’s Denver with such great care.

That said, the Dr’s in Boston we’d be having do Aiden’s surgery specialize in this valve repair. That’s something massive, and may be the difference to Aiden having a life. See in situations like this, we could have been from the beginning faithless with “Why god us? What did we do?”, We didn’t do anything. See we were chosen to be the parents of this Hero to many and we’re very thankful for the opportunity to not only save Aiden and show him the love of God and the love of people, how everyone is a miracle. We are also blessed to be bringing this much attention to Congenital Heart Defects and cannot wait until our journey slows, Aiden is home and we can agressively coordinate with the Children’s Heart Foundation and other projects to raise awareness and money to treat this condition. Our story is to show you, no matter what the odds, your faith in God can move MOUNTAINS, and when you are in your darkest hour the Lord will be beside you and guide you. This is our calling and I am more than happy to bear the pain of this to show how great the Lords work is.

With all of this said we have made the decision to cancel Monday’s operation at Denver. There are many questions yet to be answered before a decision is made. The CARD in the CICU said Aiden is doing great and there is no reason to rush a decision of where we make the surgery. Plus i’m going to make sure Dr. del Nido is personally in the operating room. He calms me about this situation and I know he can do it.

God will make the decision very clear to us. And when we make the call, if it would be Boston, i’d call his office and request Aiden to be transported to Boston for care, a chartered medical jet will be ordered out, equipped with a cardiac infant care team and Aiden will be medically flown from Children’s Hospital Denver to the Airport, once at Boston Airport, Air transported to Children’s Boston.

The rest of the day was amazing, both Tracy and I were able to do Kangaroo (skin-to-skin) contact care. Aiden fell asleep after looking at his daddy and oogling for a bit, then went to sleep, I fell asleep shortly thereafter. He is my little miracle and I love him so. We also have a volunteer organization known as “Now I lay me down to sleep” that is going to professionally photograph us for free. Here are some pictures for the day:

I’m glad so many get to witness such a huge miracle from God first hand. May he be with you in your daily journeys! God Bless.

Levi & Tracy

In our times it’s easy to stick in your private world and keep concern for yourself. Who could blame you? The economy, jobs, a health-care situation and we live in a world where it seems us as a race (and i’m not talking black, white, green or red), i’m saying as a human race, some have seem to have lost what life is about. How much impact can you make on the world? What can you do to make a person’s day better? What can you do to help out a friend in need, let alone would you a stranger?

I have always been a giving person. I find it far more rewarding personally in my heart, not a big display, than to recieve. However I am humbled by the extreme outpouring of support my family has recieved in our time of extreme crisis.

I want to quickly share with you something I think you all should know.

Congenital heart defects are America’s and every country’s #1 birth defect. Nearly one of every 100 babies are born with a CHD.
Congenital heart defects are the #1 cause of birth defect related deaths. (out of EVERYTHING, #1, TOP)
Congenital heart defects are the leading cause of all infant deaths in the United States. (more babies die of a CHD than cancer or ANYTHING)
Each year approximately 40,000 babies are born in the United States with a congenital heart defect.
Thousands of them will not reach their first birthday and thousands more die before they reach adulthood.
Each year over 1,000,000 babies are born worldwide with a congenital heart defect.
100,000 of them will not live to see their first birthday and thousands more die before they reach adulthood.

Onto a more lighter side of things. There are some people that need some serious thanking, the DeDiego’s, Moynie’s, Hamman’s and all my heart-families, all my old friends from high school and people I don’t even know. Thank you for reposting Aiden’s Cause and his site, keep it up please! Tracy and I are keeping very strong because of the level of support, we need to keep this going.

If you could understand the intensity, we face a very serious situation, they’ve never seen anything like my son even though he’s as perfect as an Angel. Only God knows Aiden’s plan, whether he will remain on earth to continue showing people awareness and that nothing is impossible through God or maybe his job has been done. I don’t think Aiden has reached enough people yet, even though he has affected so many… he changed my life, I was shy sometimes to sing God’s name on a public setting, I could hear (oh he’s a jesus nut) — Aiden showed me it’s ok… It’s ok to believe in the power of God and what he can do, look at how Aiden’s plan has been setup by God, i’m just here to report it to you. You are all witnessing continued miracles from the Lord and I pray we all see a MAJOR miracle, Aiden survive the surgery and fight off how sick he will be after it. In your name Heavenly Father this we pray.

Keep sharing these notes as well as the latest articles from http://www.babyaidensjourney.com also send your facebook friends to http://www.causes.com/savingaiden anyone that wants can always add me on facebook http://www.facebook.com/levibeers

If you’d like some default text to put up when sharing:

“The Beers family would appreciate prayers for their newborn who will undergo open heart surgery Monday at 11AM. They ask that you pray for the Dr.’s and staff caring for Aiden as well as for them. Seeing a child after heart surgery is VERY hard on a parent, pray that they the Lord bestows upon them divine calm and keep his hand guiding the Dr. while holding Aiden in his palm. Please join his cause to show solidarity with this family.”

So if you are a member of Saving Aiden Matthew Beers, send a link to all of your friends, my family would appreciate all the support we can get.

Thank you again everyone, this would be impossible without you.

Love,

Levi & Tracy

Monday if you could just think about him, and ask the Lord to install divine wisdom and master skill in Dr. Cambell, and that God guides him to fix Aiden.

When he (not if) he makes it out of surgery, as long as he recovers and continues making milestones, more and more repair options will become available. And we were told that his quality of life could easily be very good.

How’s that for a mountain that the Lord moved for my family, just the chance to save my son… Because I swear, what we were told Monday was that making his heart pump blood to his whole body and lungs along with repairing his PA’s was “extremely difficult” and then Dr. Cambell says, “that’s easy”. I swore I heard them say they would have to ignore the leaking valve and hope for the best, he said he would make it as best as it could be made and see what God’s will is.

I am peaceful with this decision and route — and I must say, Children’s Hospital of Denver, especially Dr. Addell, Dr. Kaufmann in Cardiology along the women (sry I dont know names) are kind, caring, personal, brilliant, compassionate and I would recommend ANYONE to come to Denver for any level of complexity. (However I hope they build a birthing suite sooner than later)

Help us spread the word that Aiden will have surgery on Monday morning at 11AM. You can add me on facebook

http://www.facebook.com/levibeers

and join Saving Aiden Matthew Beers

http://www.causes.com/savingaiden

Dr. Cambell has said that making Aiden’s one pumping chamber support his whole body/lungs and fixing his Pulmonary Arteries is easy. There is a valve inside Aiden which is leaking, and they are unsure as to the level they can repair this. If they can do it well enough Aiden can continue to make milestones and the plan would be to continue repairing Aiden as he reaches these milestones.

It’s just all on God guiding Dr. Cambell. We face a very real possibility of losing Aiden in surgery or directly after, however I am thankful that God has given us the miracle of chance.

Before I discuss the current situation I wish to share with you a  poem, I know alot of those who read this — their hearts ache, but I say, do not fear the will of God…

“Not too long ago in Heaven thise was a little soul who took wonder in observing the world. He especially enjoyed the love he saw thise and often expressed this joy with God. One day however the little soul was sad, for on this day he saw suffering in the world. He approached God and sadly asked, “Why do bad things happen; why is thise suffering in the world?” God paused for a moment and replied, “Little soul, do not be sad, for the suffering you see, unlocks the love in people’s hearts.” The little soul was confused. “What do you mean,” he asked.” God replied, “Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come togethis, drop their differences and show their love and compassion for those who suffer. All their othis motivations disappear and they become motivated by love alone.” The little soul began to understand and listened attentively as God continued, “The suffering soul unlocks the love in people’s hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this – it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer – to unlock this love – to create this miracle – for the good of all humanity.” Just then the little soul got a wonderful idea and could hardly contain himself. With his wings fluttering, bouncing up and down, the little soul excitedly replied, “I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people’s hearts! I want to create that miracle!” God smiled and said, “You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the othiss. They have already chosen a name for you. In parting, God said, “Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed.” At that moment the brave little soul was born into the world, and through his suffering and God’s strength, he unlocked the goodness and love in people’s hearts. Many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Lives changed forever. The world was a better place. The miracle had happened.”

That poem has helped me through alot of tough times, and even if the Lord takes my son, he changed the lives of so many and I will cherish the beautiful moments with my son.

With that said we got an answer from Boston, their findings on Aiden’s heart are the same. Aiden is a very special, very unique little boy. I could easily sit here and send his medical records to 45 different hospitals and doctors — I believe in my heart we don’t have that kind of time. Denver has offered to repair 2 of 3 problems (from what I understand) and make the 3rd the best it can be. He does have a chance it could work, he could make milestones and a year or so later, depending on what happens inside of him, could lead to a full repair. We are scheduled to speak with Dr. Cambell from Denver this morning (10/16/09), i’m going to ask him to draw his version of Aiden’s heart and what he would do at each juncture to repair or make as best he can certain parts.

Boston is not a defeat, for God says:

Isiah 43:18-19 “Forget the former things, do not dwell on the past. See, I am doing a new thing! Now it springs up; do you not perceive it? I am making a way in the desert and streams in the wasteland.”

This fight is not over yet, and God’s plans for Aiden is either the lessons he will show tens of thousands of people OR all will be shown the ultimate power of God. Either way I love my little boy, he is my hero and no matter what happens he’ll never ever leave my heart.

We will continue to pray that Aiden can overcome the odds, but whatever happens we know we will still praise Lord God for giving us every moment he did with Aiden.

Today and yesterday have been great as our little miracle has been opening his eyes and LOVES being held by mommy while being kissed by daddy. Medically they did an upper GI test which showed no digestion issues, no malrotation, perfect bowls, a lung test and xray showed his lungs in excellent condition and he’s been doing PERFECT off the Nasal CPAP. Other than his complex heart it seems as if medically speaking, he’s perfect — because no matter what, all of him is perfect.

Aiden had over 10,000 people look at his site yesterday… for being 7 days old he’s affected more people than some do their entire lives. I’m so proud of my little bugger. We need everyone to keep praying on Boston. And even if it doesnt work, we ARE NOT giving up, not by a longshot. One step at a time.

I wanted to share some pictures with you all

Thanks for all of your prayers and support. We can feel them. Keep them coming and share this site with your friends, facebook, myspace, everything.

We are very thankful to God for the perfect days we’re having with our beautiful son. And no matter what happens we will always be thankful for the time we were given. But we know you have bigger plans Lord — we wait for your guidance.

This fight isn’t over… Not by a long shot… While my little bugger has a heart beat, I am not giving up. So I called in the reinforcements, Chris de Diego (one of my best friends and former pastor), Terry Schriener (someone who has never stopped caring about me or my family ever, and a devote follower of the lord) and Walter White (a pastor who’s words move mountains) come with me to pray over Aiden. Walter anointed our son as we all prayed VERY moving words. We told God that this is in your hands and this is your miracle. Thousands of people are moved by Aiden and his fight, no one could deny his saving would be nothing short than the biggest miracle one could ever witness.

Which brings me to this…. During the exact time we were praying over Aiden — something happened, which I just found out about… Dr Pedro del Nido emailed me, at almost midnight in Boston….

God answered our first prayer… Now we have to put all the prayers in the world that Boston after reviewing everything and not just the basics can help him. So far, things do look good.

God is amazing and he has a plan for all of us… When you are facing a tough time, believe in him, praise him, thank him for what you have. And if I’ve learned one thing out of any of this, it’s hold your children and love them every second… Love everyone, life is way too short not to tell someone you love them.

God we’re praying so hard for this…. Please let Boston Help

The kindness of people

If you are interested in helping me save my son please send your donation to:

Melissa de Diego c/o Baby Aiden Beers
6411 Sand Rose Ct.
Castle Rock, CO 80108

chks. payable to Melissa de Diego

We thank you for your continued prayers and support.

Our family has overcame alot recently, a difficult preterm diagnosis, a 52 hour difficult labor and now news that the only thing to save my 5 day old son is a heart transplant, which we’re told may not even work. I cannot begin to describe the helpless emotions I bear. How I wish my own heart would be transferrable.

I fully believe that even in the most difficult of times, ones that we cannot navigate, God leads us and that’s how I fully believe I found you.

I ask a great thing of you, to review my son’s medical records for any chance at all, any that he may live and I may give him a love as great as God’s love for us. I can only imagine how busy a Cardiac Surgeon is, let alone the top pediatric Cardiac Surgeon in our great country. I will be forever in-debted to you.

I have contacted Children’s and will personally be making sure today (10/13/09) that a complete set of his medical records and all associated tests will be emergency shipped to your office marked “URGENT CARE: AIDEN BEERS”. He doesn’t have much time, I can feel it.

There are thousands of people, ones that don’t even know my “little bugger” praying, hoping, watching (see http://www.babyaidensjourney.com). I’m not asking you to do this for free, I have some of the best medical insurance in the country that will pay for transportation and care. I will personally vouch for anything this takes.

God Bless You and Your Family.

Sincerely,

Levi, Tracy & Aiden Beers

303.808.1463

We have 2 possible options that still have to materialize. I’ve already put into motion Denver’s Heart Transplant Team for them to review Aiden today for addition to the list. He needs prayers to be a viable candidate.

The other options which I made myself comes from a post I read from Kim Knipp… I called Dr. Pedro del Nido office at Children’s Hospital Boston who agreed to review Aiden’s medical diagnosis, tests, written papers — everything. They said if there is ANY other viable option we’ll be notified and we’re off to Boston.

If anyone out there has a direct-connect with our heavenly father, now would be the time to call in a favor… I love you Aiden Matthew and I’m not going to give up… No way.

My sweet son, i’m so sorry…. So so so sorry

All medical specialists from Children’s Denver are meeting early this week to discuss the surgical approach we’re going to take and what we can expect from it. We are of course praying for the best of news. It has been extra beneficial that we are able to wait for surgery to have all of the specialists and cardiologists here discuss what each think to make an appropriate plan of action.

This morning I got us hooked up with a “Family Suite” at Children’s complete with a king-size bed, pillows and a shower. This beats the heck out of the couch (oh my FREEKIN BACK!). Best of all, it’s FREE. I love Children’s!!

Given all these miracles I can’t help but feel guilty for the other babies and kiddo’s in the CICU. There is one little preemie baby in the first room when you walk in that hasn’t had anyone there yet (that I have seen) and while I understand the reasons for that (parent’s need rest too!) I can’t help but feel bad. Our friend Ninfa brought him a Teddy which they have in his Giraffe.

It’s nurse switching time and also time for a real dinner. The only thing about Children’s I do not enjoy is the food. With that God Bless all our little kiddo’s.

During an anatomy scan we were given the greatest news, Aiden has only 1 spleen in the proper location. This means that Aiden can fight off infection after surgery or if a transplant we’re needed (which they are not talking about at all) he would be better able to take it. This is amazing news because we had a very small chance of him having a spleen. God is GREAT!!!!

I’m still awaiting a full report — but early signs show good progress and no down syndrome. We are ready for his heart condition and know God has blessed him with a gift of changing the world and we get to witness these miracles first hand.

For anyone without hope, for anyone who doesnt think there is a chance, there is. God is amazing.

—

Tracy Update:

Tracy is doing amazing considering. She was also able to extract a perfect amount of colostrum that they will be line feeding him with as soon as the cards are done researching his heart a little more.

Prayers are working!!

(Very disgruntled lol, he’s about 4min old here)

I’m going to get some food, then go over to take a rest with Tracy….. I’m awfully tired, kinda dozing off as I write this.

One last thing… The staff at both hospitals, not ONE complaint… AMAZING… Thank you GOD

I’m not sure what I felt, it was the most intense feeling I’ve ever felt. To see the body of your lifeless son is something one cannot fathom, to then see your son come to life and have your prayers answered affirms a faith in God that I can never explain.

Aiden was transferred to the NICU at the University of Colorado where some amazing people worked on him. The first bit of medication they gave him he didn’t like very much and stopped breathing. They quickly adjusted it and he was perfectly fine. His APGAR had turned to a 9.

A special Flight for Life Team moved Aiden from the University of Colorado to Children’s Hospital Denver. One of the most amazing experiences of my life was riding with my son in the Ambulance. The team that transferred him were Angels of God.

Even though this has been the most difficult trying time of our lives, I would personally not change a single thing from the experience of miracle after miracle I’ve witness first hand.

After the transfer while they were settling Aiden I went back over to the Univ of Colorado to see my wife and how she was doing. I’m so very proud of her for the sacrifices she has made. I told her today that the Dr’s said Aiden is alive because of her commiting to natural vaginal birth and not resorting to a C-section.

I returned and watched Dr Moon (CARD) ECHO Aiden. He was amazing in his explaination of what was happening.

Aiden’s heart is pumping more blood to his lungs than the rest of his body, and while his lungs are happy, the rest of his body would like a little more. He has one very good performing ventricle and one that isn’t. Last night he needed blood but they said he is doing amazing.

I’ve witnessed a ton of miracles over the last few days, we just need a few more.

We THANK everyone for their continued prayers, today will tell how everything will go. May God be with us all.

—

I’d like to put a special thanks in to Neeners, Missy and Kelly the Angel… Nothing would have been possible without the PERFECT delivery team. When our friend Missy delivered her beautiful little boy a girl named Kelly took care of little Brayden in the NICU. Missy and Kelly became friends. When Kelly found out about our little guy, on her day off (being a NICU nurse a day off is worth more than GOLD) — she spent the ENTIRE DAY with us. God sends certain people to this world to perform miracles, and Kelly does just that. She stood by me to help me understand everything, she’s our “secret weapon” and words cannot describe how thankful I am for her doing that.

Not to take away from Missy and Neeners at all, they did AMAZING and words can’t begin to describe the LOVE and THANKS for what they did yesterday.

So to my Neeners, Missy and my Angel Kelly I thank and LOVE YOU ALL!!!!!!!!!

I had this edible arrangement delivered for the team working on Tracy:

I think they liked it! Can’t hurt to do something nice for the team taking care of your wife

I think he’s going to come at about 7:30… As always I thank everyone for their prayers. Once he’s here, daddy get’s to come out. I’ll have answers to all of our questions Me and my secret NICU nurse friend — YAY KELLY!!!!!!!!!!!!

…………

So they just checked her, her temp is 99, and she’s waiting for the pitocin to make the contractions more frequent. Then we’re on to delivery!!!!!

I’m about to have a son…

And what’s more, I have this AMAZING angel named Kelly that is a NICU nurse, who on her day off, after working hours and days on end is going to go with me and travel with Aiden while Missy and Neeners stay with Tracy.

We are ready.

God is great.

THANK YOU FOR ALL YOUR PRAYERS, IT HAS WORKED.

I have to say, this day was absolutely impossible without the assistance at 2AM from both Missy and Neeners and an awesome visit from my friend Jack and his Wife Mike (and their little angel). Neeners and Missy came quick after a “she’s a 6cm scare” — but they knew questions to ask the nurses to make sure Tracy got the best care possible. Amazing.

I must say the care staff, nurses, doctors and everyone here are utterly amazing too. Even though we’ve had a difficult pregnancy, it has been made wonderful by the hearts of many.

I know the next few hours will print alot of uncertainty, alot of things that may be scary — I have a secret weapon to go with me and Aiden while Tracy recovers (a current NICU nurse that’s a friend). I want to say thank you for EVERYONE who has prayed and thought about my wife and son, and while I may be scared — I know that I have God and friends and family on my side.

To all the parents facing a difficult decision, this is worth it. You can overcome this. God is amazing.

Aiden, here you come son, I love you and I can’t wait to kiss your sweet little face

Please pray for Tracy as she goes through this. I can tell she doesn’t feel good at all.

We’ll keep you updated as soon as we get more information.

Thanks again for everyones continued thoughts & prayers.